There was a point in time, some years back, where you couldn't find a single stupid pro-ana site that didn't have at least one or two of those horrible photos on it. I usually ask them first, but often some of them actually have the audacity to tell me "no. I was forced to pose in those photos along with another girl who I became friends with while this was going on by a horrible man who raped and beat us daily. He had been holding us against our will and forcing us to pose nude and semi-nude in pornographic fetish photos for these horrible sick anorexic fetishists.
Just how much of the human experience is determined before we are already born, by our genes, and how much is dependent upon external environmental factors? Oncologist Siddhartha Mukherjee tells Terry Gross the answer to that question is complicated. Their mother had some symptoms in her 30s, and testing revealed three of her four children had the genetic markers.
That said, those who carry the genes rarely get onset of the disease. Within that subset, it is rarer still to have more than a single attack. Seth Mnookin follows a family battling a rare genetic disease.
One in a Billion: Listen to the whole thing! Individuals and their physicians can apply for use of an investigational drug using FDA Forman application form created by the agency in June These laws purport to grant terminally ill patients access to experimental medicines outside of clinical trials.
In my analysis, what these laws really do is take the current FDA process by which severely ill patients with no other treatment options are able to access these medicines and strip it of vital provisions that benefit patients, adding nothing of value in return I used my time before legislators to tell them what I and my colleagues in the Working Group on Compassionate Use and Pre-Approval Access CUPA have learned after more than three years of intensive study about patient access to experimental medicines.
Again and again, we found that patients, doctors, reporters and even personnel in the pharmaceutical industry have not known that it is possible to access investigational drugs outside of clinical trials, much less how to do so. On the whole, patient advocacy groups tended to be more familiar with the topic; however, again, there was a vast range in knowledge The second issue I raised in my testimony was that of rampant inaccurate, even mythological, beliefs about access to investigational medical products One such belief is that the FDA can force drug or device companies to make their products available.
This is not true. The FDA can merely approve a request to proceed once the relevant company has agreed to it; if the company says no, there is no higher power to which a patient can appeal Another widespread myth is that the FDA is slow to review and decide upon expanded access requests.
This is not true Read on to learn about further myths, and the facts A well-known example was Gleevec, and a more recent example is immunotherapy. But this typically has not been the case in expanded access.
Upon receiving experimental drugs to try on their patients, physicians are told to report serious or unexpected reactions and a summary outcome; however, it is widely known that this is not always done.
Furthermore, the FDA does not audit these physicians to determine or ensure compliance with this rule.
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